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James (Trey) was a typical 4 yr old boy; very active and happy go lucky.
Then on Tuesday August 15, 2006 in the evening he came in from playing complaining
about a headache. He was given some children's Tylenol and he went on his
way playing so nothing was thought of it. The next day it was the same,
except then he was not so rowdy as usual. I told him "we would tell the
doctor about the headache when you go in on Friday. Thursday the headache
was worsening and I was getting concerned because wasn't eating at this
time and was laying in bed watching cartoons with a cool cloth on his forehead.
Friday's appointment came and the doctor did blood work and called and said
he had a virus. The lab told dad that the white blood count was up but not
enough at the time to be concerned about. By Friday evening Trey was only
laying in bed watching cartoons while laying a cool cloth on his forehead,
and drinking water.
Saturday he was getting worse and I was debating if Trey would be able to
wait till Monday. Trey's Dad was getting scared at this point and didn't
go into work and took Trey to the local E.R. where they repeated the blood
work. His white blood count had jumped up enormously; his pediatrician was
out of town so the doctor on call admitted him. They did a spinal tap and
we were then told he had LaCross Encephalitis (from a mosquito bite.)
On Monday morning he had a gran-mal seizure and was very lethargic. His
pediatrician was called and coming through the doors of the hospital and
she immediately told them to contact Charleston Area Medical Center he was
going down there. He was admitted into the P.I.C.U. after doing a catscan.
The doctor said he had a breathing tube ready for Trey in case he needed
it (which case thank God he didn't). We were told that he would get worse
before he got better, which scared the daylights out of us! All he did was
sleep.
On Wednesday it was like bam, Trey was awake! Giving daddy high5's and smiling!
Although when he was able to get out of bed he was really weak and was very
wobbly, when he would talk his words would drag out. He really bounced back
very quick and very surprisingly! Even the doctor was surprised. On Friday
August 25, 2006 we brought our baby boy home!!
Trey
has done everything the doctor said to expect. He said "he will still possibly
have headaches and seizures, be testy, easy to upset so try to keep him
from getting too upset, irritable, easily agitated, and hyper". We have
had the good fortune of NO more seizures so far. He still gets headaches
at times and his head hurts in loud places (lunch room and on the playground
at school. And since Trey is just in Kindergarten this year we still don't
know if he is going to have any learning problems.) At times he can be off
the wall bouncy but once he calms then he will have a really bad headache.
He also complained he is cold at times even if it wasn't really cold. It
has been a rough rough road the past 16 months but he is coming along slowly
but surely and we're hoping his behaviors will calm enough to where he can
be taken of the behavior med's and go back to being the once rambunctious
kid he was before.
So now if I'm talking to anyone about kids I always tell them my grandsons
illness and to make sure they always keep insect repellent on them when
out playing!! We always make sure Trey and his sister have it on when they
go out to play.
If for some unfortunate reason the behaviors never go away well then...
at least we still have our baby!!
Trey's Grandmother
North Carolina, U.S.A.

Posted: January 4, 2008
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