Encephalitis Cases
Lilly
Ohio- U.S.A.
Posted: June 17, 2007
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Encephalitis Cases
Lilly
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My name is Maggie Hauck, My daughter Lillyly died from Encephalitis (A.D.E.M)
in January of 2004.
Tuesday, January 27, 2004, exactly one month after Lilly's first birthday, she had a fever I could not seem to control. She had been sick the day before, but seemed to have gotten worse. She was very lethargic, and could not keep her eyes open. I called the doctor's after she threw up her morning bottle. Her doctor told me that she was probably still getting over an ear infection she had a few weeks ago. She gave me a prescription, and we went home. When we got home, I gave Lilly another bottle and she slept on the couch.
She threw up again, and I called the doctor's again, telling them I think
it is something more than an ear infection. They said they would have the
doctor call me. Two hours later, and no word yet from the doctor, Lilly
was laying on my lap and eyes seemed to 'glaze' over. I panicked and called
the Doctor, who told me to call 911. She thought maybe she was having a
febrile seizure. The EMS had a hard time getting her seizure under control.
When they finally did, we headed to the hospital. They kept her sedated,
to control the seizures.
They ran a CT scan, and did a spinal tap. They seemed to be checking for
meningitis. They moved to a room in the Pediatric Intensive Care Unit, and
kept her sedated. She had a seizure right in front of me and her father,
while the nurse was telling us what was going on. I was the one who pointed
out that it looked like she was seizing again, she was. In the middle of
the night, I awoke to her seizing for a third time, this time heavily. I
went to get a nurse and they had her father and I leave the room because
of the effort it took to control this seizure.
The next morning they took her down for an MRI, also, around noon a neurologist
saw her. They kept saying she probably just has a seizure disorder that
we were unaware of, even though nobody in my or her father's family has
a seizure disorder. After the results of the MRI were returned, they noticed
the lesions, and began to suspect something more serious was happening.
She would not wake up for us, and her brain began to swell and push down
on her brain stem, she seemed to slip very fast. They mentioned A.D.E.M
and said they think she may have that, but there is no cure, only options
that are considered 'experimental', such as steroids. They gave her the
steroids (Wednesday evening) to try and reduce the swelling, and once again
warned us that this was experimental and not proven to work. They kept her
alive through the night so we could say goodbye.
We took her off the life support Thursday, January 29, 2004, only two days
after bringing her to the hospital. The doctors, and the autopsy report,
state it appeared to be A.D.E.M because of her symptoms. My daughter was
a healthy baby girl. She was 9 lb 8 0z. when she was born, and was very
active and smart. There is no other cases as such in our family. I wish
we had more answers.
Maggie Ohio- U.S.A. Posted: June 17, 2007 |
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