ENCEPHALITIS CASES

Encephalitis Cases

Kyra

Hi, I live in Mt. Waverley Victoria Australia my daughter Kyra aged 9 caught encephalitis enterovirus in the year 2007, Kyra had a grand mal seizure while at her fathers over the school holidays. We are not together and he rang me asking me if Kyra was epileptic? Kyra had never had a seizure before that. Kyra ended up in hospital and I stayed with her for two weeks in a isolated room. In that time Kyra had hallucinations and was screaming seeing bugs and spiders which were coming after her. It was so upsetting to see my little girl in this pain. There were complaints of massive headaches and vomiting no one at the hospital knew what was causing this. They asked me so many questions.

They did a lumbar puncture and sent her home. Well of course once the medicine wore off seizures started, Kyra ate pasta that day and it was stuck in her throat. I am first aid trained so I placed her in the recovery position and I rang the ambulance and we were in hospital once again they found out by contacting the other hospital that it was Encephalitis. Well since then we have tried three medications and so far nothing stops the seizures, especially when Kyra has a cold or gastro bugs. I can not work and now care for her as Kyra has had around 100 seizures so far, varying from Absent to Grand Mal or Partial. Just when you think Kyra is ok a seizure happens. Some people do not even know what a seizure is so this makes it hard for kyra to play at some friends places.

All parents in my view should to be first aid trained. I hate explaining to people who stare blankly or do not understand like its contagious or something. Its difficult when Kyra vomits up her medicine also as you know she is going to have more seizures. It has happened out the front of the school, in safeway's, on the street and on nature strips of homes, sometimes if I am out I go to a shop to lay her in the recovery position. It is difficult as you think Kyra is ok once rested for three days, I am unsure now of when they are going to happen. Kyra tells me she is going to have one and explains it to me like a feeling like she is going to die but you only have seconds to get her to the ground as she drops.

I am upset at people who do not understand and tell Kyra that she can die from having a seizure. Also teachers who ring you to come and collect her after a absent seizure. Kyra could lie in the sick bay to sleep for 30mins to 1 hour and return to class if its a mild seizure given panadol. Last year Kyra was left sitting while seizing and was turning blue I was told by her teacher. I had a chat with this idiot of a teacher and was told by her that teaching was her priority. It is so upsetting for Kyra and no signs of getting better. Kyra is taking 11mls of Epilim and 50mgs of Lamictal morning and night. At present I am starting to buy school class books so I can help Kyra catch up as her Maths is at grade 2 level and she is in grade 4. Memory is a problem some days and being tired is another also stomach ache and headache. I hope we find the correct medication. I love Kyra so much and would like any body to email me back to chat that lives with someone with similair issues.

Look forward to hearing from you.

Janine Kyra's mum.
Victoria Australia

Posted: March 13, 2009

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