Encephalitis Cases

Arden           
  How does a mother forget the most horrible day in her life? She doesn't. March 9th, 2009. I'm exhausted both kids (my son 9 month and my daughter 3 yrs) have the influenza. I'm keeping them hydrated and hoping that this is the last days. It's been three days already. My daughter Arden is acting up and I'm thinking she must be getting better.

3 AM Arden throws up. I've had enough and decide to bring her to emergency after I've bathed her. She's not sitting for me and I'm not sure what to make of this. The admitting nurse seems perplexed at why we are there at such an ungodly hours. I want someone to tell me Arden is alright but no one does. They keep us for some test and want a X-ray at 8am. As I get to the technician, Arden throws up everwhere and starts convulsing. At this point, I'm running back to ER. From there, it's all a blur, the nice doctor is telling me what he's doing. Arden has been stripped and intubated and paralyzed for the ambulance right to MacMaster Sick Children in Hamilton. I'm still thinking this is a bad dream.

We get to Mac and they are running lumbar punctures, EEG, CT Scan and MRI over a few days. They come back two days later with encephalitis and the following day with acute nectrotizing encephalitis. They said that she's got a 33% chance to not advance from this stage (she's statue like at this point. only moving one leg and crying out); 33% that she'll progress a bit further and 33% percent that she will have slight tremors and not be able to regulate her body. I don't know what to think my perfect little angel is going to the most awful thing and I can't help her. She has inflammation on the brain stem and ponds area. She now has to relearn all her motor skills. She can't talk, smile or sit. It took three weeks for Arden to smile. It was the longest three weeks of my life.

It took Arden 3 months to be able to sit. But today, Sept 2009, she can walk a few steps without any help. Arden mainly uses her walker, she rides a tricycle like most three years old should be doing. Her personality is in tack. Thank you God!.

Only time will tell me if Arden is ever going to get better. But one time that I know for sure, is that whatever she decides to do will be done like the warrior/survivor that she is.

Mom
Guelph, Ontario
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Posted: September 3, 2009 		  adults cases

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