ENCEPHALITIS CASES

Encephalitis Cases

Myndie

I am writing because I want to share my story about my experience with encephalitis. I had ADEM (ACUTE Disseminating Encphlomylitis). I was visiting my mom for the summer (1995). She lived by this River called Provo River. I used to always go for walks down there. I was 10 and a half years old.

One day I started getting unbearable headaches and my limbs would go numb and my balance was off and I was always really tired. So my mom made an appointment for me to go to the neurologist. The neurologist wanted me to have a CT scan. Then when we found out something was wrong we switched doctors to a children's hospital there I under went blood tests a billion M.R.I.'s (maybe not that many but a lot) One spinal Tap, One Angeiogram, and they were going to do a biopsy but they decided to wait.

After a couple of months I didn't really get better but the symptoms weren't quite as bad. So they let me go home and go back to school but no P.E. because my gate wasn't back to normal! I still had headaches up until August of 1998 they went away only until May of 1999. Then in 2001 my eyes started acting really weird and I went to the ophthalmologist and he said that there was something blocking my vision field. So then I had to go back to a Neurologist and I had to have a spinal Tap again and one MRI. Then I had to go to a Neuro - ophthalmologist and I had a bunch of test on my eyes and she came to conclude that I have lesions on my Retina that will eventually cause me to go blind and cause me pain, which they do!

SO that is my surviving story. Oh yeah, out of the three people who had gotten ADEM, I was the only one to survive, and I was the most severe case.
Thanks,

Myndie
Utah, U.S.A.

Posted: March 03, 2002

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