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| Mike |
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My son, Michael, was 21 when diagnosed with micoplasma encephalitis in 2005. We live in Minnesota. He was ill for 4 weeks prior to being diagnosed with meningitis, and then the encephalitis came next within days of being in ICU. He had severe headaches, elevated temp., extreme lethargy, and finally a grand mal seizure which is when they finally did a LP and found the meningitis. He was not expected to survive.
After spending two weeks in our local hospitals ICU, he was transferred to the Mayo Clinic, where he spent 5 1/2 weeks in a coma. As he gradually awakened he was unable to speak, eat, sit, move, or control bowels or bladder. He has had to relearn everything. After spending 5 months in facilities, he was allowed to come home.
He remains in PT and OT, now almost 2 years later. His ataxia is quite severe. He remains in a wheelchair, but can walk with a walker and one assist for short distances. His speech is coming along, but the ataxia affects that, too. He has various types of seizures, even being on 2 anti-seiz meds.
I have been researching this type of encephalitis, mycoplasma, and have found it to be quite rare. I am interested in finding others who have had it.
My heart goes out to all of you as survivors and caregivers. What an incredibly devastating illness this is and how profoundly it can affect one for a lifetime after recovery. Thank you for sharing your stories as this site has been most helpful to me.
Thank you,
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Mike's Mom
Minnesota, USA
Posted: Feb. 3, 2007 |
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