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Kristina
I was 5 months pregnant during April 2001 with my second son. My 23-year-old husband and I had OK jobs with OK money. He was expecting a good raise and I was going to stop working and go back to school. On April 14, 2001, he came home from work early. They had found him under a truck and called an ambulance. My husband told me he was over worked with hardly any sleep and he had not eaten well all week, and just passed out. They told him to go home and rest.

The next morning, Easter morning, we got up talked, joked about how his seizures had come back. He had not had one since he was 8. I went to the kitchen to get us all some chocolate milk, my 2 year old stayed with his daddy. On my way back with the glasses I met my son, standing in the hallway, starring into my bedroom. I told him to take his milk, but he just stood there, scared. I went into the room to see what he was looking at. There on the bed was my husband having a seizure. I thought he was kidding around. I yelled at him to stop but he did not. I called 911 and my life has never been the same. After that it all went down hill. By the end of the week he didn't know who I was sometimes, or that we were having another baby. He slept all day and he would not eat. The doctors had no idea what was wrong. They did MRI after MRI. Found Right temporal lobe sclerosis. They told us if he got worse they would take that part out. Then it moved. Finally they said it was Limbic Encephalitis. Appears 1 week to five years before a tumor or three years after treatment of a tumor. They have found no tumors. He was put on prednisone and came back to life.

My husband now has no short-term memory, constant headaches, dizzy spells, chronic fatigue, high blood pressure, and constant nausea.

We lost everything. We left our apartment because I could not pay the rent on my own. I stopped working so that Medicaid would pay his medical bills. The stress almost caused me to lose the baby. We live off of welfare and food stamps. And HUD pays the rent for our new apartment.

If any one has had the same encephalitis, or has any ideas, please feel free to email me.
Kristina Gutierrez
Texas, U.S.A.
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Posted: July 22, 2002