It was just after July 4th, 2001. I was having breakfast on a Sunday to wrap up a fun-filled 20-year high school reunion weekend. I suddenly became short of breath and nauseous and had to leave the restaurant. I went to my dad's house, told him I wasn't feeling well and headed home. I awoke the next day with a splitting headache but had to get the kids to daycare. Every time I would stand up my head hurt so bad I vomited. I got them to the center and headed back home to spend the day on the couch.
Early that afternoon, the daycare called and said my daughter
had a fever. I drove to daycare and as I was sitting on the
floor putting her shoes on her my right side went totally
numb. I literally dragged myself out to my van and drove home.
Shortly after that I suddenly lost my ability to talk. I knew
I had to call for help but since I couldn't talk, I went upstairs
and logged on the my computer at work and sent an e-mail to
3 of my friends there telling them I needed help. It took
me about 30 minutes to write as I couldn't think straight
and couldn't remember their last names. As soon as I sent
it my phone rang and it was one of my friends asking if I
was all right. All I could do was cry and get the word "no"
out. They sent an ambulance to get me. At the ER they did
a CT scan and I told them I thought I had a migraine headache.
They said I was probably right and gave me a shot that made
the head pain go away but I still couldn't talk well. They
sent me home and told me to see my primary physician the next
day.
Tuesday I woke up again with severe head pain and called to make an appointment with my doctor. He couldn't see me until 4 pm and when I did get there I had to lay on the chairs in the waiting room and run to the bathroom twice during the exam to vomit. He also thought migraine and gave me two prescriptions and sent me home. I took the pills but nothing was getting better.
Wednesday came and I was still in severe pain and confined
to the couch. On Thursday, I was again bedridden with pain.
In the afternoon my son came running home from the mall saying
someone had stolen his bike. Shortly after that I began to
really get agitated. I knew it was time to go get the kids
at daycare and I handed the car keys to my 12 year old and
told him to go get them and started screaming at him until
he began to cry.
At that same time, my daycare called and asked if I was going to pick up my
kids and I was incoherent and demanded that they put my 5
yr old on the phone. When she got on I told her that "mommy
needs help" and she told the daycare worker and she called
an ambulance. I then went out onto the back porch and told
my neighbor "there is something wrong with me - I can't wake
up". I sat down on the porch and that is the last thing I
remember as I became catatonic.
At the hospital, I couldn't communicate and was talking
in gibberish. They said I was "highly agitated" and would
swing at anyone who touched me. I managed to rip out both
IV's they had in my arms while they were doing a spinal tap.
My friends called my mom in Florida and the doctors told them
to tell her to get on the first plane she could to come to
MN. I remember coming to about 10 pm and my dad was holding
my hand and I said "Hi Dad". Then I was out again until morning.
The next morning I awoke in ICU and they transferred me to a bed in the neuroscience wing. The Centers for Disease control doctors were there as well. They told me I had viral encephalitis - something I had never heard of. My mother flew in that afternoon and told care of my children while I was in the hospital.
I was in the hospital for about a week and it was the weirdest time of my life. I had many hallucinations and would say really strange things. I constantly had a sense that I was in a different room as the scenery kept changing in my mind. I remember calling the nurse in one night to tell her that a man dressed up as a Minnesota Viking was hiding in my room.
The head pain was really bad and so they did a "blood patch" to the site of the spinal tap. Basically they take blood out of your arms (a lot of it!) and inject it at the site of the tap to seal up the leaking spinal fluid.
I went home after a week and struggled with severe headaches about every other night. I had to return to the doctor's office once for an injection for the pain and another time to get steroids. The pain and vomiting continued for about 4-5 weeks and I thought I was never going to recover. In addition, I couldn't do the simplest things. I couldn't draw a map to help my mother get around town, I couldn't type at the computer or play the piano, I had trouble talking at times and making sense with my words. I couldn't look up a telephone number in the phone book.
These side affects REALLY frightened me the most. I didn't
know if I would be like that forever and I knew I needed to
be able to work to support my family and I really needed to
be able to take care of my children. I cried a lot and just
waited it out. Slowly I regained all my facilities but it
was a 10-week recovery.
I remember searching the Internet at the time when I wasn't sure if I would
ever be well again and I wished I had a support site like
this to turn to at that time. I have read many of the other
stories out there and am struck my how different everyone's
battle is and also how LUCKY I was to walk through that disease
without permanent damage. I have truly been blessed and will
never again take a single day for granted. Bless all of you!