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Julia
I am 36 years old and had encephalitis back in 1966 at the age of 2. My older brother and sister had just recovered from the mumps which was how I contracted the viral encephalitis. We were living in Cape Elizabeth, Maine at the time. My Mother says that I had a 5 hour nap one day and woke up "staggering like a drunk". She knew something was really wrong when I didn't overcome the apparent drowsiness and was walking into walls and cupboards as she was preparing dinner. She'll never forget the "interrogation" by hospital staff who thought that I might have been abused.

Finally, the doctors did a spinal tap, I was diagnosed and I spent about 3 weeks in the hospital. I, of course, have no memory of any of this. I was always told that I had suffered from an "inflammation of the brain" and in the first grade it was discovered that I was totally deaf in my right ear as a result. My parents always sent a note into my schools requesting that I be placed in the front row of the class so that I might hear the teacher better.

My academic performance was less than acceptable in a family where Dartmouth College degrees are revered. My parents were frustrated as they knew that I wasn't into drugs, I had decent friends and yet they couldn't understand my lack of motivation, poor concentration and overall "laziness".(Especially in Algebra :o) I had the hardest time retaining important information. I almost failed out of public high school after 2 years and was fortunate enough to have been "shipped off" for 3 more years to a small private prep school. I just managed to graduate. I then took three years of college courses at my state University and my grades were never consistent. I have always enjoyed more creative pursuits such as painting and photography.

I am now happily married with two kids, but have always been disappointed in my inability to complete a college degree. I like to think that someday I might try again. It wasn't until this year that I really started thinking about the correlation between the encephalitis, deafness and questionable learning disabilities. You can imagine my reaction when I discovered your web site and started to read stories from people who describe identical symptoms and frustrations! I am thrilled that young people today may be spared being scrutinized as a result of this information. I intend to continue researching and learning more on the subject. Thanks for the boost to my self-esteem! :O)
Sincerely,

Julia
Maine, U.S.A.
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Posted: June 29, 2000