My name is Jules, I live in the UK and I am 42 years old . When I was 14 yo I
was on holiday in Turkey and I contracted viral encephalitis. I was very
sick and could hardly stand and my speech deteriorated rapidly. A Bulgarian
doctor attended me in a tent but he only spoke German and so my parents
strapped me in the car and took me home to Cyprus ( we were with the Forces
- they were teachers.)
I was immediately admitted to hospital where I just got worse and worse.I
had lots of tests and a lumbar puncture but in the end I couldn't do
anything - move, speak or see -the only sense unaffected was my hearing!
After some weeks I got a tingly feeling in my legs and gradually I got some
movement back. The worse thing for me was that I was a flautist and I had
always dreaded anything happening to my hands to stop me from playing. I had
never dreamed that I wouldn't be able to use my hands at all! In fact, it
took about a year before I had enough strength in my hands to hold my flute
and then about 6 years before I could play again due to my lack of
co-ordination! I had to re-learn everything- how to crawl and then to walk,
how to jump,feed myself, speak, write-everything.
After 2 months in hospital I went home because there was nothing else they
could do for me. I had lots of therapy of all kinds, in fact, so much that I
had to miss a year of school. For years afterwards I had to go for check-ups
until finally I was told that I had got as better as I was ever going to and
I would always have a weak left hand and a speech defect.I was left-handed
but because I couldn't use my hand properly I had to learn to write with my
right hand.
I went to teachers training college but because I couldn't shout or write or
move quickly enough I didn't qualify even though I passed all of the
academic side. Then I got married and was told I could never cope with
having children, so I had 2! Because my husband is in the RAF we have moved
around a lot but I always worked in education, mainly with Special Needs
children who seemed to accept me better because I have problems like theirs!
Now though, mainly out of convenience, I have a job with the Civil Service
working at the local RAF camp which lets me walk to work.
I don't tell many people what has happened to me and I wonder how much in
fact they notice-I think that through the years I've probably been much more
self-conscious than others-I have been mistaken for a German! My daughter
and son say that they don't notice my speech as that's all they've ever
known. 5 or 6 years ago I had to go on medication to stop the tremors which
were preventing me from sleeping, so now I take pills every day and always
will. I think that now, after 26 years I am as 'normal' as I ever will be!
I would love to hear from anyone else with similar experiences or just anyone with any questions etc.