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| Donna |
I am 42 in 2007, and I got encephalitis around 1996 in Baton Rouge. It is still hard to recall all the dates. I thought I might have been
pregnant at the time of this encephalitis time. I went to the hospital for a bladder infection and then I was in a wheel chair and being
taken some where. This is where all is it all got blurry. I was in the physiatrist ward because they did not know what was wrong with
me. My husband was on the outside and was the only person looking out for me.
They put me in the psychiatric ward because they had thought I had just snapped.
It took the doctor's a week to find out was really wrong with me. I had every test that
you could think of. I had a physiatrist, speech therapist, neurologist and many
nurses. My grandmother knew how sever this was and so did my sister. I don't remember
all the people that came by to visit me.
I stayed in this ward for 3 week and recovered another 4 weeks at home. I found out later
that I was pregnant, I only got Stuart prenatal vitamins and I found out they fight
this with antibiotics. I had 2 spinal taps and ran a fever and every thing was goofy.
My baby was fine and term. The doctor found no heart beat so I had a sonogram, the baby was fine. I missed my oldest boy walking and much more. This is
still hard time. I walk with a cane and my balance is still very bad and my temper is short. I still can't stand on a stool and change
a light bulb. If I have no wall to hold I fall. Simple thing's that most people take for granted I can't do. I didn't go deaf or die,
I found out this is very serious and some time's fatal. My husband gives me a hand with this. I still try to get on as best I can.
I have for the past month seen Neurological doctor. She is a very good doctor and her field is the brain and it's disorders. I had many tests done. We
think it is damage done to my cerebellum from the disorder. There is no surgery possible just years of therapy. We go back to the doctor
for the final diagnosis on DEC. 19th, 2000.
Dr. Jahan (my doctor now) wants me to have occupational, speech, and physical therapy. From the MRI it showed that my cerallum is now
the size of a babies. Now we know and we can take the next road. Therapy 3 times a week.
Update: I saw another doctor his name is Doctor Rass in New Orleans at the LSU clinic. This doctor looked at my MRI and
told us right off the bat that this was since birth and showed its side affects now. We now have the answers we were looking for.
The doctor did ask me if I was clumpsy as a kid and I had to say yes I had 30 odd stitches as a kid so I was very clumpsy kid. The doc
understood why.
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Donna
Louisiana, U.S.A.
Posted: July 19, 2003 |
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