Encephalitis Cases

Denny           
  In the summer of 1963, my softball team had just finished the season atop the league. Just before the championship game, I had to quit the team to take the required summer session classes at Itasca Park, the origin of the Mississippi River. I had just completed all my lower division science classes for my chosen field of Forestry at the University of Minnesota.

I was playing catch the first day and reached for a ball above my head, which caused me to lose sight of the ground. I did a backward summersault. I could not understand why. As I started to study, I found I could read a page, and not even know what class it was for, let alone what I had read. I soon returned home with my folks. I checked into the University hospital. After 10 days of testing, nothing turned up. My folks took care of me a few days, but even though my Mother was a nurse, they could not handle me. They checked me into Neurology. From July I have no memory except being fed a ripe olive with a pit at the university hospital. It was also my first and only out of body experience as I then looked down at the room, me included.

I have been told that my condition had gotten progressively worse before that, but after a short time, I had my first memory. The nurse's station had Halloween decorations. The Dr's kept asking me if I knew what day it was. How could I know what day it was when I had not seen a calendar for months? I really hated the hospital and tried to figure how I could steal a wheelchair and go home.

I remembered several high school classmates and one teacher visiting me. I found out later that I didn't recall many of them. They finally diagnosed me with MS, but a week later changed it to Encephalitis because of the progression of the illness and because I was too sick for MS. I was transferred to a rehab ward. I felt badly because I could not do anything the others could do including talk. But my mind was starting to work again. I was told that I had one side of my body paralyzed, that the other side had joined it. I was completely paralyzed. I hated OT because I just wanted to get better and out of the hospital. But when I started PT, I would sneak back to the rehab floor and use their equipment alone. They caught me, but that didn't slow me down. My rehab ward had one orderly who always pushed us to do everything for ourselves. He showed me how to tie my shoes, but I had to do it from then on. He was the first hospital person I trusted and liked. He helped me.

I was discharged just before Christmas, but signed myself back in for 10 more days before New Years. I had my right eye swing well to the right causing me double vision . This time, I put myself in so I didn't feel like a prisoner. More ACTH Adreno Chortico Trophic Hormone by I. V. That and cortisone was all they had then. I drove to the hospital for several follow up appointments before one day my regular doctor was not there, I convinced his replacement to sign for my driver's license. I tried several schools and failed because I couldn't write yet. I did graduate from a trade school and boy I tried hard, but just couldn't make it at work because of a lack of coordination and that frustration. I tried several more times. Once, I was laid off, so I thought I'd try the university again. I joined the chorus and marching band. That was hard because I couldn't move my feet well, but boy I tried. The first quarter of my junior year, I got a 3.8 average. My only math course left was statistics. I tried very hard. Because of the Viet Cong War protesters, The university decided to let all students take one class Pass/no pass. I jumped and got a "D." I graduated. B/A in social work. A four-year course in only 8 years.

I tried several jobs, but couldn't do them. I finally got a job driving a city bus. Maybe that was because he had deemed me not able to drive 8 years before. I held that job for 25 years. I then retired on a disability. I could not handle the stress. I lost 2 wives, one house, and one great relationship because of depression. I didn't know about depression before. Now, there are great drugs to help. I have had 13 of the 15 possible outcomes listed for E. I now play with my banjo, fix my meals, attend TBI groups, and I am active in my Masonic Lodge. I find I can use my schoolwork and experience with Encephalitis to help people with many disabilities. I help MS patients in a pool doing exercises. They gave me an advanced patient. He was a lifeguard as was I. I let him swim alone. I knew I could be in the water next to him in 3 seconds. I knew how he likes to do all he can alone. He must have depression too.

Denny
Minneapolis, MN, U.S.A.
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Posted: September 3, 2000
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