Encephalitis Cases
Deborah
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Hi my name is Deborah, I got Encephalitis in October 2009 when I was 46 but have not had a definitive diagnosis, probably ADEM or Brainstem. I live in England. Initially my left hand and face went numb and I was really tired. After about two weeks the numbness spread to all of my left side and I was referred to a neurologist where an MRI revealed inflammation of the mid brain / brain stem. Over the next two weeks I began to stagger, drag my left foot, walk into walls and have trouble with my speech. My vision deteriorated so I could no longer drive. I was admitted to hospital for IV steroid treatment but got progressively worse, developing double vision and being unable to walk. I also found I cried or laughed for no reason. Hysterical laughter was really embarrassing, I just couldn't stop. I remained in hospital for 3 weeks and had about 8 MRI's, CT scan, loads of blood tests and lumbar puncture. The only thing that was shown was the brain inflammation. I was due to have a brain biopsy but luckily began to recover before this happened. After 6 months the double vision subsided and I am left with numb fingers in left hand and a frequent sudden loss of muscle tone causing inability to move or speak (Cataplexy). This has decreased from every 2 minutes to every 30 min's. I still get extremely fatigued and stressed really easily. Still off work but there is hope for full recovery. Deborah U.K.  Posted: May 11, 2010 |
