It was a Sunday, 9th April 2006, and I had a bad headache, which was nothing
in itself, as following a car accident as a passenger in 1958, I suffered
a backlash and damage to my neck and I often had severe head-aches.
The bout of Viral Encephalitis probably started on Thurs-day, because
as I got out of the shower late at night, I noticed a slight rash above
both of my knees, and around my ankles and lower legs. I felt fine and
I did not have a high temperature.
On Friday I made an appointment with my Doctor for Saturday
morning, but by Saturday the rash appeared to have diminished
quite a bit, so I phoned the receptionist at the doctor's
surgery and cancelled the appointment.
On Sunday morning I attended Church while having a very bad headache.
At 4.00 p.m. I attended the Choral Society just down the road to hear
one of our grand-children singing. I enjoyed the singing, however, I was
extremely sensitive to the loud clapping in support of those singing.
Following the singing I had a cup of tea and talked to others standing
around. I then drove the two km home, as I had no trouble driving during
the day. I was still feeling well apart from the bad headache
Following the evening meal, I watched T. V. for a while, but instead
of continuing to watch TV further into the night as was my usual practice,
I went and lay down on my bed at about 8.00 p.m. Betty (my wife) noticed
that I had disappeared and found me asleep and that I had taken the T.
V. remote control with me. While I don't remember anything after 8.00pm.
Betty says that I started acting and doing some unusual things for the
rest of the night, which caused her to sit up all night and watch me as
I continued to get worse as the night wore on.
Betty said that I would go to sleep but not for long and that I would
go to the toilet about every 20 minutes. She found me at the bathroom
cupboard among the tablets, and asked me what I was doing, to which I
replied that I was getting tablets for my bad head. Betty sat on the side
of my bed, knowing something was wrong. She wonder-ed if my problem might
have been high blood pressure. At one stage Betty found me in the kitchen
about to make a drink using liquid from the soft soap container.
I must have walked around a lot throughout the night, and Betty afraid
to go to sleep, in case I might do something that I shouldn't, took all
the keys out of the locks of the doors and hid the keys to ensure that
I could not get out of the house. Betty told me later that I had gone
out into the garage attached to the front of the house. Betty said that
while I was walking around, she asked me if I knew who she was, and said
that I just laughed at her. So while I don't remember anything, I was
responding to Betty. Sometime after 3.30am. While Betty was phoning the
Ambulance, I walked out and asked her what she had said, as I could not
hear what she was saying. By the time the Ambulance people came inside
Betty said that I was lying on the bed in the spare room and I could no
longer walk, and that they could not understand what I was saying,
By the time the Ambulance arrived at the Emergency section of the Base
Hospital I had worsened. When I was placed in the Intensive Care Unit
I was very agitated and had to be restrained and put under sedation to
enable the Doctors and nursing staff to do a brain scan, as it was thought
that I might have had a stroke. After two Lumber punctures the Ambulance
then took me to the Mater Hospital for a M.R.I. but when they started
to bring me out of the sedation I would struggle too much and as I had
to be very still for the M.R.I. they had to leave me under sedation to
take me for the M.R.I. Apparently I had pulled out the tube down my nose
and had also pulled out the drip from in my hand. On the Tuesday when
they again tried to bring me out of the sedation, I was not with it and
struggled too much so it was sedation again to keep me quiet. At one stage
while trying to bring me out from under the sedation I was so uncooperative
that all of my family were trying to keep me in bed.
By Wednesday I must have improved a little, but I don't remember anything
until the Thursday, when I was moved further along in the I. C.Unit. I
think it was the Friday that the nurses got me up to see if I could walk,
and I had to walk on the spot. After a while they took me and showered
me and gave me a shave. I was not allowed to drink water because I might
choke on it. I knew that I was in hospital but that was about it as far
as memory goes. I was later taken up to the medical ward in the hospital,
where I recovered quickly. After several days in the medical ward, when
told I could walk around and that I could phone Betty, to my astonishment,
I could not recall our phone number, or any other phone number. I now
have a problem, as I can see something and know what it is, but I can’t
find the word for it. They spent a lot of time asking questions and communicating
with Betty and other family members, explaining what was happening at
all times and of their diagnosis of Viral Encephalitis.
The Doctors have told me that the following problems are from brain damage
from the swelling caused by the Encephalitis, but that I should not get
any worse.
Problems:
- A loss of memory in some areas. I often can't find the word I need
in conversation even though I may be able to see the thing I want to
talk about.
- I can't plan as I used to do, perhaps more of a lack of
incentive, or concentration.
- Many of my computer skills (which were many) have come back slowly,
but I am or so slow now at typing and constructing what I want to type.
- I can get so tired that I just grind to a halt. I can
tire easily and fully, and quite suddenly.
- My Arthritis and Fibromyalgia, which were getting worse,
have really intensified since the Encephalitis- I don't
know if there could be a connection.
- Loud noise like the clapping I mentioned earlier after
singing, before the Encephalitis, affects me. Now sharp
sudden noise worries me.
- Initially following the Encephalitis, after I was out
of hospital I improved quickly, but now I seem to have come
to a standstill.
- Apprehension is high when traveling in areas away from centers with
Major hospitals, for fear that the virus causing the Encephalitis might
reactivate. The lack of medical expertise and facilities and the great
distance between Major centers in Queensland give cause for apprehension.
- I am doing a lot of reading in the hope that all things
caused by the Encephalitis will improve. However, reading
is something I have to feel like doing or else it does not
work. (Use it or lose it)
Daily, I count my blessings, and realize I have much to be thankful
for: I really name them, the faculties I have, the memories, the abilities
I still have. My wife and family. My friends. What I can still do through
corresponding with many people I have ministered to over 35 years when they
have problems or suffer loss. The blessings of my faith and hope.
I am trying to act on the positives available to me, rather than the negatives.
Finally- How wonderful to have been able to be part of a group of people
who share the same experiences. Finally- How wonderful to have been able to be part of a group
of people who share the same experiences.
To the Doctors and Nursing Staff of the Intensive
Care Unit of the Mackay Base Hospital.
Greetings. I write to acknowledge my appreciation of the professional
expertise and the caring attitude of the Doctors and Nursing Staff of
the Intensive Care Unit of the Mackay Base Hospital, during my recent
bout of Viral Encephalitis.
I am now well on the way to recovery, but I will never be
able to fully express my thanks and appreciation for the assistance
given to me at a time of great need. While I was not aware
of what was happening, I do especially thank everyone for
communicating to and caring for my family the way you did
in a time of uncertainty for them.
Forever grateful,