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| Amanda |
Hi, my name is Amanda and I live in Croydon England. I thought my story was really confusing until I looked here on this web site.
Last November we had friends staying and I was rushing around as normal. I felt like I had flu coming on and had a headache. I had just got my Son out of the shower and I was drying him off when I felt alittle strange. I dropped to my knees as I felt like I was going to fall and I had my 9 year old son and his friend in the room. The next thing I remember is ambulance people being in the room. I thought I could stand and be ok but no chance. In the ambulance I was sobbing uncontrollably.
At the hospital they decided that I had a water infection and sent me home with antibiotics. I remember getting into the car and feeling awful. The
next 3 days are a complete mystery and it scares me. I have been told that I was talking in riddles during this time and crying in my sleep. The only
recollection I have - and I am sorry to you men for putting this but it is important- is that there was a big commotion in the bathroom. I know now
that I had started my period and it took 3 of my friends to hold me, clean me and get me sorted out. I feel so embarrassed now but at the time I knew
nothing!
I lost nearly a stone in that week and my husband took me back to my GP. Once there I felt very emotional and cried a lot because I felt so bad.
The antibiotics had finished and I was still unwell. Once in with the GP I apparently started to shake violently and my husband tells me that the
GP became agitated. When my husband asked him if this was normal he said it wasn't. He tells me I was not responsive at all. The doctor prescribed
stronger painkillers for the headache, something for the dizziness and said to call an ambulance if I got any worse.
I came home, had no energy and felt like I was in someone else's body. I was having strange thoughts and nightmares but I was awake! When the numbness
started and the headaches got so bad - even with 60mg codeine every 4 hours, I was taken back to hospital. I was there for a week, had an MRI and
lumbar puncture when we told them that many of my family on my mothers side had died young from brain tumors.
I was there for a week, had trouble walking and no appetite at all. They discharged me and said I would be treated as an outpatient as they were so short of beds. The doctor told me he had ruled out what was worrying him and the rest of the tests would be routine.
Since then my memory has been awful. We run our own business and I have been absolutely useless...not even able to take down a telephone number. Trying to listen to the number and put it down on paper - it felt like something was missing in the middle and I couldn't do it! Am I going crazy???
I want my normality back. I find it such an effort to even get in the bath, wash my hair etc.. But I also find it so difficult to explain to my family
how I am feeling, especially my husband. So I try and put on this big brave face but it is wearing me down. I don't feel like I am depressed, I just
feel like I am someone else in my body sometimes.
And I feel sad to think that I was telling my friend that my Mum was on her way round when she died in 2003. Today I had an EEG and it was only the lady talking to me about this herpes virus that can attack the brain that I have looked on this site. So as it stands, I have not been diagnosed with anything other than "WE THINK ITS A VIRUS"
All help gratefully accepted from this once level headed independent business woman, mother of 3 who feels like she is in tatters!
I will now continue to read and learn.
Take care.
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Amanda
Croydon U.K.
Posted: April 17, 06 |
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